Tag Archives: CP

le Tour de Fun…

The Student Representative Council held a ‘bike day’ for all students today.  It was one of our Education Week celebrations.

Top pic kids on bikes, vibrant colours, bike helmets, bright blue school uniforms prevail, Mac in his jogger in the midst of it all.  bottom pic kids in the distance, Mac and his mate riding up to meet the crowd.

In the lead up I talked to Mac about how he might be involved. He likes being on the back of a bike in his bike trailer… we don’t do it very often, we don’t own good bikes and his bike trailer/jogger is generally left at school as it is hard to transport with the wheelchair.

But, here was a great opportunity for his mates to learn how to ride with his jogger on the back.  Our village always has groups of kids riding around the streets… it would be cool if Mac could tag along for the ride without adults needing to always be with them.

Mac and I talked to the ‘lads’ at school.  What kind of bike should we get?

I know we could have borrowed one… as I said, there’s tonnes of bikes in the village.   However, if Mac “owns the bike” it’s always available for his trailer.  We will know it’s in good condition, safe and confident it will have brakes (so often considered “optional”).

The lads knew exactly what we neeeded… a 24″ geared bike, probably mountain bike style.

Off shopping I went.  Our trusty local bike shop so often repairing Mac’s wheelchair and servicing his jogger was my one stop shop.  They had a great little bike, super light weight, they cut me a deal – we were sorted.

Mac now owns a bike!

And the kids now know they can head off with him at any stage for a ride (their leg muscles permitting).

There was not a smile bigger than Mac’s today – he was loving life sitting back while his mates did all the work.

What a fantastic day… here’s a sneak peek of what went down.

One of the kids remarked… “he’s not that heavy, it’s more your energy gets used up listening too him laughing behind you”… I guess he might be a bit distracting.

Thanks to the SRC, you put on a great day.

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words need not apply…

The cinema was dark… Transformers 4 was proving a fun feast for our senses.

Mac along two of his mates, W & C, had been transfixed from the start.

The other boys shared popcorn while Mac provided the odd giggle, ‘coo’ or ‘glaar’ when the intensity of the moment required it.

We were most the way through the movie when out of the corner of my eye I saw W lean in close to Mac and heard him whisper…

W:    “Mac, are you enjoying the movie?”headshot of Mac, big open mouth grin, scruncy nose, sepia print

Mac’s response was silent but offered W a facial expression not unlike this image – a big open mouth, scrunchy face response

W:    whispering again… “I take that as a yes.”

And with that he settled back into his seat as they watched the final showdown of the movie.

Verbal responses not necessary.

Authentic.  Simple.  Beautiful.

 

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Filed under friends, Inclusion... straight up!, things that make me go "glll"

todos com todos

everyone with everybody…

A fantastic documentary about the inclusion of children with disability in mainstream schools in São Paulo, Brazil.

While almost the entire doco was “quote worthy” I particularly like the simplicity of this translated statement by Samuel’s father…

 

“I don’t see any other model.

In the segregation model people with disability don’t learn their autonomy and people without don’t learn to deal with the difference”.
Samu’s Dad

 

This movie is part of the Why Heloisa Project www.porqueheloisa.com.br
I think I will be spending some time clicking around in that project/website in the coming days.


For our English language blind viewers I have requested an English translation… will post it here if I can get my hands on it.

todos com todos…

 

 

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Filed under Accessing the Curriculum, Inclusion... straight up!

why bother, indeed…

“Why would you even bother” her statement was more matter of fact than argument “he’s gonna get places quicker and have more fun if we’re pushing him in his chair”.

“Yeah, it wouldn’t be, like, easy, it’d be hard and you’d still need help” came another observation from one of the boys.

You see the question had been posed from a classmate:
“Will Mac ever be able to walk?”

Mac’s first response (with his switches) to that question was a swift “no”, and on further enquiry as to whether this “bothered him” another clear “no” response.

More comments, more discussion … the consensus was that, ultimately, “walking really isn’t all that important” the important thing was getting where you want with who you want (aka mobility).

If only more people would listen to the wisdom of 10 and 11 year olds.  How great for Mac to be involved in a discussion that ultimately determines that his way of existing is not only OK, it is totally authentic and not considered ‘less’.

Sure, there was some talk about Mac getting to drive his own wheelchair, what might be needed, how they can help that happen, what needs to be invented to make it better (of course robotics came up 😉 ) … but all that is about Mac being empowered, it’s not ‘dissing’ his current mode of mobility.

It is so refreshing to see these kids really think through what it is they are talking about, really think.

So much of our society can be quite superficial about these things, like walking is some amazingly necessary skill, or a prerequisite for a worthwhile life.

Mainstream media and social media got all excited about the opening ceremony of the Football World Cup having a paralysed man use an exoskeleton to walk and kick a ball – it was all a bit weird and ‘icky’ – I am glad Mac and his mates say “why bother?”

Sure, there may be some people out there who are unable to walk and really want to, I respect that.  I just don’t think we need to perpetuate a damaging message that walking is some sort of ‘Holy Grail’ for all people who use wheelchairs.

I don’t hate the technological advances that come of these ventures – who knows what may come of them?  We may finally end up building better wheelchairs where steps, gutters and raised thresholds soon become no obstacle.  Chairs might be able to become more compact, more comfortable and well, while you’re at it … could we perhaps make them ‘hover’?

In the meantime, I’ll continue to listen to the wisdom of kids.

As I was digging around for a suitable image to use in this post, I came across Red Nicholson’s post over at Attitude Live.

Red nails it – have a read.
http://attitudelive.com/blog/red-nicholson/opinion-why-obsession-walking

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Filed under Access all Areas, Inclusion... straight up!, Technology - things that help

making the world more ALLsome

You might remember me mentioning that the “Handball Machine” was the catalyst for those “Macifications” (mods to Mac’s wheelchair) his classmates worked on last year?

The kids (Mac included) just decided one day Mac needed a way to play handball.  Their idea was to have something mounted at the front of Mac’s jogger to allow him to “play” without getting hurt.

For days, I would turn up at school with them telling me what they had tried, asking me to bring in more items to test, giving me the results on their experimentation.

Some of the failures included:

  • bin lids (too hard to mount and metal)
  • tennis racquets (too much chance Mac could get hit if they didn’t aim well enough)
  • plastic container lids (too flimsy)
  • various wheelchair trays (too big, too little, absorbed the bounce of the handball too much)

Until …

Someone came up with the excellent idea of a Crazy Catch (a ball sport reflex/catching trainer).  I was dispatched immediately to purchase one for the ongoing experiment (cost … inconsequential 😉 according to the kids)

The feedback following their ‘first trial run’ was that they felt a customised size was necessary.  Followed up by a simple “could I make that for them” (hooray for hacksaws).  A couple of cheap golf buggy umbrella holders to help hold the Crazy Catch arms in place and the odd piece of velcro was all it took to make their invention a reality.

This year their “hack” has moved onto the football field.  The net angle gets reduced a little, Flag Football tags (AusTag here in Oz) are attached on the side of the jogger to allow Mac to be ‘tackled’.  Their next planned mod includes a pouch on the front of the net to allow the ball to be passed (with a degree of skill including reverse spin or perfect placement) to allow it to roll into the pouch.

I love watching these ideas come to fruition and then evolve.

Mac loves being in the midst of it all and considers himself “quite good at handball”.  Although i’m not sure the speed and chaos of the football field won’t win him over.  Time will tell.

It is very ALLsome.

 


 

VIDEO AUDIO DESCRIPTION & SCRIPT
So, it's not that cool when you can't play handball with your mates.  But with mates like Mac's it's 'way cool'. At our school the kids invent mac-ifications.  That is, modifications to Mac's wheelchair so they can all do more things.  Like this handball machine.  All they needed was a bike jogger, a Crazy Catch, two umbrella holders and some velcro.  (video footage of the kids playing with the ball bouncing off the front net).  Pretty awesome don't you think?    Just goes to show... when ALL means ALL, we make the world more ALLsome.

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Filed under Access all Areas, friends, Inclusion... straight up!, The 'mod' squad, things that make me go "glll"

the powtoon portfolio…

A homework assignment saw the need for Mac to develop an ‘about me’ portfolio.  We talked about what he might want to include, what it is that is important to him about himself.

We nixed the idea of a poster and decided to use PowToon and their built in templates.  We picked the template, decided on an image to use and then put Mac’s words into the online program.  Some of the items Mac just gave me single words and we discussed how we could expand those ideas into sentences. We also talked about how to split that information across different slides for visual effect.

So if you were wondering just who Mac is… here’s what he thinks you need to know (audio description available below video).

)

AUDIO DESCRIPTION:
Coloured slides with image of blond cartoon boy.  Text reads:

Hello, my name is Mac Burns, I am 10 years old.
I am a son, brother, grandson, nephew, cousin, friend.
I’m a bit of a thinker; I like to listen and learn;
but I don’t say much… yet!
I use switches to speak and wheels to move.
I particularly love playing football and handball with my mates.
My favourite subject is maths
and I like learning about politics (with my Dad).
In my spare time I like to listen to music and books;
watch movies and TV;
learn new things on my computer;
and swim… I love to swim.
I really like funny things, stuff that makes me LAUGH.
I love my life.

Final text is accompanied by an image of a stick drawing of Mac in a wheelchair and a huge vertical ramp… click the following link to the blog post to find out more about this image.

https://inkyed.wordpress.com/2012/04/16/no-limits/

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Filed under Accessing the Curriculum

choose your own adventure…

Today we were given a sneak peek of an assessment task Mac undertook.  A photo and comments from his teacher (Mr B) arrived showing his work in the text window of his communication device.

Mr B was really pleased with his work, but perhaps more excited by the fact Mac was clearly proud of his work.  It’s an interesting development.  For quite some time now, Mac has (regularly) been going ‘on strike’ in class by either refusing to use his switches or going to sleep in an attempt to get out of doing work.  It’s certainly not his finest trait … and is certainly more prevalent when it is work he thinks he might not get correct (or literacy).

However, on two occasions this week he’s completed a task and then been obviously proud of himself.

I wonder if it’s a new level of maturity, maybe that somewhat fixed mindset of his might just be opening up to new possibilities.  Oh how I’d love for him to enjoy working on things, particularly literacy, just for his own pleasure.

So what work did he do today?

Here’s the raw text in the Dynavox window.

Image shows the text window of a communication device screen with the text "Dragonflies gracefully
flew above the quiet garden.
 Tarn dressed in her favourite yellow eyed dragon shoes and yellow clothes jumped ".  It is the raw text with no punctuation.

And here’s the raw text turned into a ‘piece of writing’ (with Mac assisting with the punctuation) to ensure he can see how all his hard work is worth it.

blue background with swirls and dragonflies with the chalkboard style text showing the punctuated writing "Dragonflies gracefully
flew above the quiet garden.
 Tarn, dressed in her favourite yellow eyed dragon shoes and yellow clothes, jumped."

They are delightful words… I can’t wait to find out what happens next.

I love the unusual name he’s chosen for the girl and the “stylin” shoes he’s described.

Perhaps our blog readers can add the next line or paragraph in the comments for me to share with Mac.  He can then decide if he wants to collaborate on a “choose your own adventure” style of writing or perhaps be motivated to ‘go it alone’.

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Filed under Accessing the Curriculum, Inclusion... straight up!